NF Endurance Team Ride in the Race Across America!
Shannon's Soldiers and Ari's Angels are Racing for NF Research - on a bike!
What is the Children's Tumor Foundation and NF?
The Children's Tumor Foundation is a 503(c) non-profit charitable organization. The mission of the CTF is to fund NF research in an effort to enable treatments and a cure.
Neurofibromatosis (NF) is a progressive and debilitating genetic disorder that causes tumors to grow along the nerves and nerve endings, randomly throughout the body. Additionally, NF can cause brain tumors, blindness, deafness, bone abnormalities, learning disabilities, and more. NF occurs in more than one in 3,000 births and is more common than Cystic Fibrosis, hereditary Muscular Dystrophy, and Huntington’s Disease combined. Currently, there are no effective treatments and there is NO CURE for NF.
What are we doing to help?
Over the past several years the NF Marathon Team has run thousands of miles by participating in marathons across the country. This year, we are putting a new "spin" on our efforts to raise awareness and raise funds for NF research; we are going to clip-in and peddle our bikes over 3,000 miles from Oceanside, CA to Atlantic City, NJ as we participate in the 24th Annual Race Across America
Why RAAM?
RAAM allows teams or individuals to participate in this cross-country endurance race, in which cyclists ride continuously, 24 hours/day, 7 days/week for 10-12 days.
RAAM is the most grueling cycling event in the U.S., but it is nothing compared to what our NF heroes have to endure 24/7 everyday of their lives.
Who are the RAAM teams?
Ari's Angels and Shannon's Soldiers are our two four-men cycling teams riding in honor of Arianna Kendra and Shannon Mahoney - two young ladies suffering the devastating effects of NF. Shannon and Ari's fathers are the team captians for each team. One bike from each team will be on the road 24/7, with each team traveling up to 400 miles per day until they cross the finish line in Atlantic City over 3000 miles from the starting line.
How can you help?
Please support the efforts of our endurance teams. Individual or team pages can be viewed by clicking here.
7 comments:
We wish all of you the best.
As we say in the theatre world, "Break a leg!" Though it does take on an entirely different conotation here...
Your friends from Toad Suck, AR send their thoughts and prayers! If we weren't hooked already - we would be after reading your note. May God's speed be with you (along with a tough rear end :)
Go TEAM!!!
Have a great ride! I'm so sorry we couldn't be there to cheer you on. We'll be with you in spirit. I'll go to a spin class this morning, wear my NF singlet and pretend I'm going along for the ride! You guys Rock!!
Go team! I wish were able to be there to cheer you on. I'll go and do a spin class this morning wear my NF singlet and pretend I am with you guys!
Have a wonderful ride.
THANK YOU FOR DOING THIS!!! Ride strong, and we'll be cheering for you over the next week as you ride for NF! Let's find a cure!!!
THANK YOU!
peace,
the Camiolo Family, New Jersey
GO! GO! GO! GO! GO! GO! GO!
So proud of EACH of YOU and can hardly wait to see you rolling through O-H-I-O!
~the Kast crew
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